Thanks to Athanasius Kircher who read one of my earlier post about Elizabeth Wray over at my Mindlesschatterofabusymom blog.. I just received this Media Advisory. I knew about the Rally and was planning on going until there was a death in the family and my plans changed.. but I had never seen the Media Advisory.. This is Excellent. Thank you Lynn Johnson.. you are an amazing PANDAS/PANS warrior mom.
October 11, 2012 CONTACT: Lynn Johnson
PANDAS Resource Network
757.642.8700
** MEDIA ADVISORY **
Rally to Support Family who lost Parental Rights over
Sick Child to Boston Children’s Hospital
Oct. 11 – 13, Blackfan Circle and Longwood Ave. Boston
Supporters working to return Elizabeth Wray to the care of her parents are holding a 3 day demonstration at Boston Children's Hospital to protest a lack of proper treatment for Wray's autoimmune disease Pediatric Autoimmune Neuropsychiatric Disorders (PANS). Boston Children's Hospital blocked Elizabeth's parents from seeking treatment at a different facility by having their custody taken away and placed with the Commonwealth of Massachusetts. They and their lawyer are currently under a gag order at BCH's request.
What: A rally to return Elizabeth Wray to her parents for proper care and ask that Boston Children's Hospital recognize PANS for the legitimate medical condition that it is, and stop treating it is a psychiatric disorder.
When: Oct. 11, 12, 13 2012, 8am-3pm
Where: Blackfan Circle and Longwood Avenue across from Boston Children's Hospital
Elizabeth Wray Story: http://www.fightingpandas1.blogspot.com/
The PANDAS Resource Network represents 4,000 families affected by this little known disorder.
Lynn M. Johnson
Executive Director
PANDAS Resource Network
www.PandasResourceNetwork.org
757.642.8700
lynnj0750@msn.com
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Great job you people are doing with this website. read on
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